Achieving Justice in Genomic Translation Re-Thinking the Pathway to Benefit
Fr. 89.90
inkl. gesetzl. MwSt.,
Beschreibung
Produktdetails
Einband
Gebundene Ausgabe
Erscheinungsdatum
15.09.2011
Abbildungen
2 illustrations
Herausgeber
Burke Wylie + weitereVerlag
Oxford University PressSeitenzahl
224
Maße (L/B/H)
24/16.1/1.7 cm
Gewicht
476 g
Sprache
Englisch
ISBN
978-0-19-539038-4
This book explores implicit choices made by researchers, policy makers, and funders regarding who benefits from society's investment in health research. The authors focus specifically on genetic research and examine whether such research tends to reduce or exacerbate existing health disparities. Using case examples to illustrate the issues, the authors trace the path of genetics research from discovery, through development and delivery, to health outcomes. Topics include breast cancer screening and treatment, autism research, pharmacogenetics, prenatal testing, newborn screening, and youth suicide prevention. Each chapter emphasizes the societal context of genetic research and illustrates how science might change if attention were paid to the needs of marginalized populations. Written by experts in genetics, health, and philosophy, this book argues that the scientific enterprise has a responsibility to respond to community needs to assure that research innovations achieve much needed health impacts.
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